society Archives - The Cracked Door

How a Tongan Pageant Queen Reclaimed Her True Self (A Life Snippet)

(This week’s Life Snippet is about a Tongan woman who used to travel around in beauty pageants across the Pacific before having a mental health breakdown from the stress. Now, she is rebuilding her life back home with the support of her family. She explains what the world of beauty pageantry was like for her, why it led to a breakdown, and how she got out of it.)

Mele (not her real name) stopped doing beauty pageants seven months ago. She started when she was 17 and ended by the time was 21.

Being from Tonga in Polynesia, she competed in different competitions throughout the Pacific, but many would treat her differently as a Polynesian woman. For example, in a competition in Manila, Philippines, the pageantry set aside her and all other Polynesian women, treating them as second class competitors from the get-go. Filipino beauty standards tend to favor lighter-skinned women. She got so frustrated she quit the pageant early. Similarly, people in Hong Kong could be rude to her because of how she looked.

She said that she used to cry every single day and experience frequent panic attacks when she did the pageants. This culminated in a mental health breakdown, which was when she realized it wasn’t worth it anymore and she needed to get out. She quit pageantry altogether.

She decided to head back home for seven months and is staying with her family while she rebuilds her life. She is doing a lot better now. She gained back some weight, and she has been dealing with the emotional and spiritual burnout from her ordeal. She no longer has panic attacks or crying episodes nor does she feel randomly agitated by little things like she did when she performed in beauty pageants. Her family has been supportive of her during this time and given her the space to figure out who she is. At the moment, she prefers staying home and being with them relationally to working or doing any other activity.

At the same time, family pressure may be slowly creeping in. She is the eldest daughter of seven kids with many obligations to take care of her younger siblings. In particular, her youngest sister is three years-old, and she acts as a second mother to her. This can be a lot of pressure, but being the eldest taught her how to take care of things and to lead.

She also seems to be experiencing pressure to marry. She said, in Tonga, despite the fact that people cannot legally marry until they are at least 18, many (especially girls) still marry between 15 and 20. There are some changes to this, but as someone in her early twenties, she seems to face pressure to get married and through that transition to a new life. This may disrupt her current respite, and she seems hesitant to do so until she’s ready. How to juggle between her own healing while rebuilding her life and facing family pressure to marry seem to be the biggest question she faces in her life right now.

Freedom Found by Leaving One’s Home and Traveling the World (A Life Snippet)

(This Life Snippet is about a young adult from Barcelona, Spain, also traveling the world. For her, this journey is about leaving the “prisons” of her hometown and finding herself in the process. You can see more of my Life Snippets of different people in different parts of the world here.)

Julia is a 29-year old Spanish woman from Barcelona who is traveling the world. She has spent most of her time so far (about a year) in New Zealand on the work-travel visa program doing various odd jobs (ranging from picking fruit to hospitality jobs). I met her on a short trip to Tonga in Oceania, where she went on a couple day vacation to swim with whales.

She likes aspects of Barcelona’s culture but also felt the need to get out. One reason is the city’s recent rise in cost of living (largely due to the increasing influx of tourists). More importantly, however, she felt constrained by the community there. She wanted space from her abusive, alcoholic mother, in particular.

She likes the fact that Spanish culture is communal, but as a young adult woman, she found those relationships constraining. In her experience, people there tended to have a prescribed model for how people (especially women) should live their lives: find a job, get married, and then build a family of kids. For example, when she tells people back home that she is currently traveling the world, their most common response is, “What is wrong with you that you are not building your life?”, as if the fact that she is not settling down with a job and family is the only way to build one’s life.

One of her most valuable lessons traveling is seeing how many different ways people live their lives in various cultures around the world. She sees a freedom in this that she can’t experience in her hometown. In her experience, in New Zealand, people leave each other alone, and she also finds a freedom in this. For example, she can walk down the street without having to talk to people or implicitly explain herself like she would back home.

She really enjoys New Zealand but sees it as a place to live for a year, not long-term. She plans to head back to Spain in about three months. She will travel to Southeast Asia and/or Micronesia first, though, before heading back. She plans to get her dive master training so that as she travels throughout Southeast Asia she can pay her way working at different dive centers along various beach towns as she goes. She may work at t one for a few months before moving on. To me, this seemed like her ideal lifestyle (at this moment in her life), and even though she said she planned to head back to Spain in three months, I suspected she would end up preferring doing this for several months longer instead before heading back. She seems to gush at the possibilities, clearly excited about it.

I have talked with many Westerners who want to travel the world by working at different dive centers like this. For them, it seems like an ideal way to make enough to get by for those who want to travel and really enjoy beaches and the beauty of the ocean.

As a college student, her first international trips were to other parts of Europe (such as London and Prague). That is when she first experienced how visiting a new country can free you to be someone else: she is not tied down by others in her community and their associations with her. She can explore new parts of herself.

She studied biology with a focus on animals and in graduate school, took a more extensive trip researching how tourists feeding monkeys influenced their behavior in Bolivia. In the specific part of the Amazon she stayed, tourists frequently fed a specific species of monkeys causing them to expect food from humans and become violent when a human they encountered did not feed them.

This reflects a wider concern she has about animal-based tourism. She talked about how many tour companies do not respect the animals, instead preferring to mistreat the animals so that they can guarantee tourists will be able to witness them. For example, she saw tour companies in Indonesia feed whale sharks to encourage them to show up and then bring large groups of tourists who then swarm and frighten sharks. This influences their behavior, causing problems and potentially harming them and the ecosystem in the long-run.

In certain situations, she has mixed feelings about this, however. For example, in Kalimantan (also called Borneo), Indonesia, she went on orangutan tours. Some tour companies seemed to feed the orangutans to encourage them to come, but at the same time, the tours were a key source of income for a relatively impoverished community. If they were not able to do these tours, the people would most likely have to cut down the forest to plant farms (the next option as a viable source of income). That loss of habitat would wipe out the orangutan population anyways. Thus, in this instance, she felt like the tours were a reasonable middle ground for both the local human and orangutan communities, allowing them to best meet their needs. This reflects a tension and complexity I have also felt about animal tours while traveling the world (maybe one day I will write about this topic in more detail, after I have had time to do some more research on it).

She really loves New Zealand, but she does not like how the country seems built on the labor of immigrants, particularly those who come on a work-holiday visa like her. She gets to see New Zealand, but she is also stuck working low-pay, temporary jobs while those in New Zealand who own and manage those businesses receive all the benefits. New Zealanders don’t like to work, instead preferring to rely on immigrant workers such as the pool of young adults on work-holiday visas. Many on this visa are paid close-to break even, especially since rent in New Zealand is high. Thus, they cannot save. She could only save when she bought a camper van, deciding to live camping outside even for several months when it was cold. This allowed her to avoid the high rents, though.

Overall, she seems to enjoy her life. She is not only discovering the beauty of New Zealand but also seems to be finding herself. This experience is giving her a break from her family (especially her mercurial mother) and her confining community back in Barcelona. She seemed content just being and seeing where life takes her.

Life Snippets: Glimpses into People’s Lives

As I travel the world, I have listened to a lot of people’s stories. These “Life Snippets” are glimpses into people’s lives around the world: what kinds of issues they face given their cultural context and how they choose to navigate the challenges in life. Hearing people’s stories helps me understand the rich tapestry that is humanity, and I hope it does the same for you.

Here are the Life Snippets reverse with the most recent first:

Fail, Pivot, Feed: Lessons Learned Hustling in Baguio, Philippines

This is about a local entrepreneur I met in Baguio, Philippines. It’s part of Life Snippets Series, where as I travel the world, I compile glimpses into people’s lives around the world, what kinds of issues they face given their cultural context, and how they navigate the challenges of life. You can find more of these snippets here. If you want to read another story about a woman trying to start a restaurant business in a different part of Southeast Asia with very different prospects, see this.

She is one of eight children: four boys and four girls. She studied psychology in undergrad. One of her brothers, who was a professor I believe also in psychology, committed suicide at the age of 22. She said that she felt like the family did not ask him how he was doing enough or show him positive affection. She finished her degree but decided not to work in psychology because she associated that with her brother. She also said she has had to forgive herself and others and to heal from this, which has been a process.

She loves cooking and serving others food. She much prefers that, finding it very life giving. She currently runs a small, counter-serve restaurant. This is her fourth or fifth business. The others failed, and she finally learned how to be successful in it.

Her first business was a restaurant that she co-started with a friend. She and her friend had several disputes. In particular, her friend bought stuff without her permission, which caused the business to blow through its budget. She said the core problem was that they weren’t on the same page on who would run the business. Her friend wanted to have someone fund her to do her own business, and she wanted to be equals in the process of the business. She also said she had to learn the hard way value of first approaching the person positively instead of accusatorily.

Her friend offered to split the business 50-50 with each person controlling their portion to do their thing or cash out and cut her losses. She chose the second because the lack of an amicable partnership made continuing to work with her seem unrealistic. She said she had to learn to make sure that you and the person you are working with are on the same page before working together on a business.

She then set up an online clothes store with her sister, but she eventually gave this up because it was not generating enough revenue. She also started a food stand near Baguio’s main university, but this too failed because she was not prepared on how to run the ins and outs of making food in a cost-effective manner.

With this business, she finally has success, though. She started in February of last year. On her opening day, she made 3,000 Filipino pesos (about USD $32) and the next day 6,000 pesos (about $64). She broke even from her starting expenses 3-4 months in. She generally makes about 30,000 pesos (or $320) a month, which is good enough to get by on. She tends to sell out on her food everyday with a line of customers going around the corner of her block during peak hours, a clear sign of success.

She said she learned the lessons from her past businesses. She set this restaurant up by herself instead of getting anyone else involved. It’s next to a big grade school and gets a lot of business in weekday afternoons when the kids finish school. Her strategy is to sell significantly cheaper than other nearby restaurants so that she sells more of it, and it seems to be working.

Her restaurant is a single room that’s about a meter/yard wide and maybe 3 meters/yards long. That’s her kitchen full of her stove, cookingware, food, etc. In the front is a little wooden board facing the street where people come up and place their order. Once she makes it, she hands it to them, and they go on their way.

She works practically nonstop. She works six days a week except Sundays, her one day off. She wakes up at like 2:00 am or 3:00 am to buy her food for the day at the market. She then works until around 9:00 pm when she closes (but sometimes she closes earlier, closer to 8:00 or even 7:30 pm if she has already sold all her food).

I suggested she may need to take some time off to rest by eventually hiring an assistant to work some of the time instead of her. She said that moments during the day when she doesn’t have customers is her rest. She took a week-long vacation to go to Manila a few months ago as well.

Her plan is to save money to retire by at least 48 (she’s currently 37), even if that means hustling now. For retirement, she wants to go to the rural province where part of her family is from.

Many of her siblings work abroad, since wages are low in the Philippines. One is in Saudi Arabia; another Japan. Others have traveled to other bigger cities in the Philippines where they can make more money. She had a job offer for a white collar job in Thailand, and she refused it. She prefers staying here in Baguio with her parents. (In Filipino culture, often one daughter – generally the youngest – is expected to stay back with her parents.)

She also said she helps others. She said that when a person asking for food walks by, she gives it to them, giving them whichever dish they want. Similarly, she gives her leftovers to the street cleaning lady who comes by with a broom to sweep the street or sidewalk in the evening. She believes in karma, and that if you help others, you help make the world around you (the community, nature, etc.) a better place for yourself.

When Advancing Seems Hopeless (Life Snippet from Battambang, Cambodia)

This woman’s story seems to be a story of doing all one can to beat the odds and rise above the cycle of poverty. It’s part of Life Snippets Series, where as I travel the world, I compile glimpses into people’s lives around the world, what kinds of issues they face given their cultural context, and how they navigate the challenges of life. You can find more of these snippets here. For another snippet also from Cambodia but from someone with a very different position in life there, see this.

(Caveat: We spoke in 2023. I decided to maintain the present tense tone in this piece, but the present refers to the end of 2023.)

Chivy (not her real name) is from Battambang, Cambodia. Her dream is to start a restaurant, since she loves cooking and hospitality. She and her cousin recently co-founded a restaurant. It’s on the first floor of the same apartment building that her family (her mother, uncle, aunt, cousins, and her) rents the second floor of. But the business has been struggling.

She worked at her restaurant from 9:00 am until 3:00 pm everyday, and to make ends meet, she had a second job working the evening shift at a local bar as a barista from 3:00 pm until midnight. Her cousin works at their restaurant during the evenings until 10:00 pm when Chivy is gone.

The rental for her restaurant business costs $200 a month (Cambodia uses the US dollar as one of its currencies, so she’s paid in dollars), and her barista job pays her about $400 a month. She uses her second job to pay the rent for the restaurant and keeps the rest to contribute to rent for her home expenses for her and her family.

Battambang has been an important tourist destination until the covid pandemic. Then tourism stopped, causing huge hardship as most people in the small city lost their jobs. People working in tourism, food and beverage, and other service sector industries were the worst hit, because there were now few customers to pay for these services. When I was there, the pandemic had ended. Tourists were starting to come back, but not to anywhere near the same numbers they were before in Battambang and Cambodia, so restaurants still struggled to find customers.

At the same time, she is exhausted. She works fifteen hours a day with only has nine hours in the day to split between relaxation, any chores she needs, and sleep. She has one day off a week on Wednesdays. She says everyday she feels exhausted. Her friends have told her that she is slowly killing herself by overworking, and she suspects she can’t sustain this forever.

At the same time, she really wants her restaurant business to succeed. Her dream is to start a restaurant. Her cousin wants to throw in the towel, saying they haven’t gotten enough business to keep them afloat much longer, but she wants to keep trying. She hopes she can make it.

Both her and her cousin have been strategizing the best way to beat the odds and rise economically from their initial position, but they have found this incredibly difficult.

Chivy would like to move to the US, where she would work for at least 10 years. The greater income in the US (even if she works a low-income job in the US where she is barely scraping by while there) would allow her to save far more money than she’ll ever earn here working as, say, a barista. She would use that money to buy a home for her mother. The family would then craft that home into a homestay where they could rent out a few rooms to tourists and through that, build wealth to allow them to advance to the middle class in Battambang. She told me that moving to the US is a dream, though, that she knows will never realistically happen.

Likewise, her cousin has been trying to find a job in South Korea. She applied for a program the Cambodian government hosts to work there. The program pairs Cambodians with companies in South Korea, where they tend to work in a few different types of low-wage blue collar or service sector industries like manufacturing, agriculture, or if their Korean is considered good enough to interact with regular customers, food and beverage.

She had to take a series of exams to demonstrate her competency. She studied Korean for three months in order to prepare for an exam. She needed a score of 110 out of 200 to pass, and she scored 125. She also had to take a dexterity test, placing blocks in holes and other physical activities, which she also passed.

She is waiting to see whether a Korean employer will choose her. She is pessimistic that she’ll get an offer, though. Korea’s program has 400 slots for Cambodians, and about 2,000-3,000 Cambodians apply for these 400 slots. She said they mostly select men in their twenties for factory work, the industry that would be most likely to hire her, so as a 33-year old woman, they may not pick her.

If she does get a job offer, most contracts are for two years, although some stay for as long as five years in total after renewing it a few times. The typical pay is $2,000 a month in Korea, which would also allow her to save to buy a home to use as a homestay. If this doesn’t work out, though, she may move to Siem Reap (a major tourist city next to the famous Angkor Wat) where tourist and food and beverage jobs are more plentiful.

Chivy’s and her cousin’s stories demonstrate the complexities of trying to advance economically in small cities and towns in Cambodia. Other residents in Battambang have told me the area can feel almost feudal with class mobility being very difficult and people becoming locked into their station in life. This shows how difficult it can be to change that.

Even the best entrepreneurial endeavors are likely to fail and options feeling limited, causing them to look to other parts of the world where they can work and save money, but these options are also limited. It’s easy to feel sad and stuck, and even working 15 hour days may not be enough to cut it to create one’s dreams.

Indifferent Decisions (A Short Story)

(Here is a reading of the story if audio is more your thing)

“So, what should we put?” I asked, pen in hand, staring overwhelmed at the piece of paper.

“Maybe Christmas?” My girlfriend answered.

“What?” My other friend interjected.

“Like Christmas would be nice.”

“That strange creature came to us and bestowed on us the choice of what will survive the apocalypse tomorrow, and the first thing you think of is Christmas?!”

“Sure. It’s a start.”

“What other ideas do you have?” I intervened, as my other friend furled her brow at me. I wrote down Christmas for now.

“What are the most important things that our nation has to offer? Like democracy, our Constitution.” My friend shouted.

“But look what democracy got us now…” She quipped.

There was silence for several seconds.

“I don’t know,” he finally broached the silence. “We are bound to have some kind of legacy. Our culture must have built something great that we can bestow to future people to enjoy.”

I sat there. I thought about the incredible promise we once had: human rights, the dream that everyone would get a house, the Civil Rights movements. “We squandered everything we once had,” I finally lamented out loud. “It all turned out to be lies and false promises.”

“I know what happened, but there must be something in all that that is true and lasting, that future generations need to learn,” my friend almost begged. He so wanted this to be true.

I thought of how chaotic the last several years had been. Always, another disaster after another. A fanatical lunatic in charge. My mind hurt from thinking through all that happened. I could have survived so many mini-apocalypses, but the idea that something truly horrid befell us tomorrow only made me feel drained and depleted. Just let it be quick to get it over with.

“Maybe all we have left is our warning,” I finally concluded. “Maybe if we included the story of how we failed, others could avoid our mistakes and not become us.”

“I don’t think any future human would listen,” my girlfriend objected.

“They might,” I replied.

“We wouldn’t have listened.”

The truth of this hit me for a few seconds.

“It’s our only hope.”

Sleeping with “Bar Women” in Siem Reap, Cambodia as a Way to Meet Someone (A Conversation)

(This is part of Life Snippets Series, where as I travel the world, I compile glimpses into people’s lives around the world, what kinds of issues they face given their cultural context, and how they navigate the challenges of life. You can find more of these snippets here.)

One morning while I was getting breakfast in Siem Reap, Cambodia I had a long conversation with a white US American living there. For anyone unfamiliar, Siem Reap is a small, tourist city in Central Cambodia withu a population of around 350,000 most known for the absolutely amazing Angkor Wat ruins, one of the marvels of the world.

This account is just one perspective on complex dynamics between Western men and Southeast Asian women. It exemplifies the types of inequalities and power dynamics in these kinds of relationships and how both he and the Cambodian women he have met navigate these relationships.

The guy had lived in Siem Reap for about 7 months. He is deciding whether to settle here long-term or go back home. He says he has everything he wants in life (such as a nice home, food to eat, etc.) except for a woman.

He has gotten frustrated, though, with the transactional interactions he’s had so far with Cambodian women here. He’ll meet different women at bars, take them home, sleep with them that night, intending for them to be a one-night stand. But then the next morning, they ask for money. He says the amount of money they ask for is not much, but he finds it insulting. It makes him think, “I thought the woman was simply interested in me, but then I realize, ‘Oh that’s what kind of relationship this is.’” He also said he usually meets “bar women” or women who specifically go to bars to meet guys there, which to him are “like this.”

He said he felt frustrated in the US with having to pretend to like people’s personalities or have someone play a wingman in order to get to sleep with them. In Cambodia, he can say, “I think you look pretty; do you also think I’m attractive? Okay,” and go have sex. He also likes that women are more upfront about complimenting his body, for example strangers telling him he looks attractive.

In contrast, he got frustrated with how in the US, women are selective and would seem to judge him on things like his job and salary (he worked a blue collar job often labeled as “lower status”). Here he is comparatively more desired. He admits that Cambodian men seem to have it harder than white men such as himself, though. They often have to go through several hoops like justifying their career path if their work is considered menial.

In his opinion, Cambodians require less in life here in Siem Reap: often just wanting a place to sleep, enough food to eat, and a motorbike to get around. For him, people do not seem to know what they are lacking materially: if they lived in a Western country, they would own so much more monetary wealth and material stuff. But to him, this ignorance prevents many in rural Cambodia from seeing what they lack, lowering the material standards of what a “successful life” looks like, almost like a coping mechanism. (Note: This is his opinion. I do not agree that rural Cambodians do not know what they are “lacking” but find the reasons for these differences in cultural expectations for material things to be a bit more complicated.)

Thus, when the women he sleeps with asks him for things, he can hardly fault them for their request. They are often asking for basic needs like food, and compared to the US, what they are asking for is not that expensive. At the same time, the requests make him feel uneasy

I found it interesting talking with him. I could relate to the frustrations and hurt about having people so frequently ask you for money, but it seemed like he was in some way using his status given to white men in that community to have one-sided, short-term sexual encounters. One-night stands are okay when both sides reasonably know and agree on what to expect, yet I sensed that the women he was having sex with had very different expectations and assumptions than him, seeing the sex as a beginning of a relationship, not just something they are doing that night.

Because of his privilege, he could enforce his expectations that this was a brief sexual encounter. He obviously controlled whether he helped others financially, and he could move on to another woman if this woman had what he considered too unreasonable an expectation. That allowed him to satisfy his own desires (both for sex and to be complemented for his attractiveness). To me, this seemed like a vain and ultimately self-defeating approach for finding satisfaction emotionally, relationally, and even sexually.

I found it sad. He seemed to have some kind of insecurity, which he sought to satisfy by continually having sex with different Cambodian women and seemed either oblivious or indifferent to how that subtly positioned the women as a type of object for him. Then he got frustrated by the ways those women tried to respond within that.

These kinds of cross-cultural relationships can be complicated to navigate, though, especially given differences in power. Everyone has expectations for how to interact, which are influenced by one’s cultural context, and when in another culture, it’s definitely okay to communicate your expectations and find people who respect and abide by your expectations. At the same time, it’s important to be aware of where others are coming from and to be aware of how your power and privilege may unfairly impact the situation. I think he simply felt frustrated with how the women did not abide by his expectations, moving swiftly to get what he wanted without thinking through what their encounter must have looked like from their perspective and how his power and privilege shaped the interaction itself.

This kind of obliviousness can be common among those who are in a position of power in society: particularly white men in other cultures. It can also make one think about how positions of power could lead to similar ignorance in our own lives.

Covering for a Flight (Short Story)

Covering for a Flight (Short Story)

Putri quickly uncovered her face. The security officer needed to see her to compare with her Indonesian ID card. She rushed to cover herself back up with her niqab before anyone else could see her, but she struggled to tuck the fabric back in place. She had never really worn a niqab before and couldn’t figure out how to get it just right. Ok, done. She did a doubletake around to see whether anyone had seen her.

“That’s all,” the officer said. “Have a safe flight.”

She walked over to her gate, worried that she’d be spotted. Her family didn’t know she was taking this trip, and she wanted to keep it that way. The airport was small. Only a couple gates were necessary for the small town she lived in.

While walking to her gate, her stomach started to growl. She still had an hour before her flight, plenty of time to grab lunch. She walked up to a nearby counter to order some food and stood in line. After she told the lady what she wanted, she turned around to find a table. That’s when he spotted her.

“Hello Putri, is that you?” a voice called to her from behind her in the line.

She turned around, and there was Ismail in a casual yet professional suit jacket and button down shirt. What was he doing here?

“What are you doing here?” he asked first. “Or, I guess, I didn’t know you were going on a trip.”

“Yes sir,” she replied.

She got a better look at him when she turned around to find a seat. He looked like he was wearing nice clothes that he hadn’t tidied up yet, almost as if he was flying to a business meeting and would button his collar and apply his tie once he arrived. He smiled at her as she walked by.

He approached her table a few minutes later after he had gotten his food, “Funny thing seeing you here,” not asking if he could join her.

She said nothing. “You look nervous,” he said to keep the conversation going. “Have you never flown before?”

She nodded.

“I see. I was nervous the first time as well,” he tried to reassure, but she got the sense that he had been too young the first time he had flown for him to really remember. Being from a wealthier family in the town, he was now a business man. He was always going somewhere on some trip.

“Yes, my flight heads out soon,” she replied, hoping to use this as an excuse to leave the conversation.

“Where are you going?” he responded.

She had been so anxious she had completely forgotten where she was flying to. She got her ticket from her pocket, which read that she was flying to Bali. Too frazzled to say its name, she showed him the ticket.

“Oh, that’s a fun place,” he replied. “Today, I’m going to Manila, but I wish I was going there instead. It’s much more fun,” chuckling.

“Are you traveling alone?” he filled the resulting silence with.

What an unfair question. She had never been able to lie, so she simply nodded her head yes. He looked at her like someone eyeing a nice cake at the bakery.

“And are you meeting anyone there?”

She nodded no.

“Wow, have you traveled alone before?”

Again, she simply nodded no.

“That’s very brave of you.”

“Thank you,” she murmured politely.

Never mind that he traveled alone all the time. She leaned back in her chair as if to get away from him as much as possible. He now saw her as available.

“You know, it’s very nice to get out of this town every once in a while. It puts things into perspective. To see new possibilities.”

She eyed the clock and checked the time of her flight. She was about to say that she had to go catch her flight, but he came in too fast.

“When is your flight?”

She read him the time.

“That’s not for another hour. You don’t have to worry about it now. Being your first time, you must be a little nervous, but trust me, it’s fine. You have plenty of time.”

Ugh, why won’t he let me leave?

She looked down the terminal hallway to think about her options. How could she get away from him? She saw a sign for the toilet. That would work.

“I have to go to…” she began, but before she could mention the toilet, he came in again.

“I was talking with your mother the other day.”

She paused and sunk a little into her seat. This wouldn’t be good. She couldn’t leave whatever he was about to say unsettled. She would have to stay.

“She said you have an exciting interview coming up. That’s amazing!”

He paused, clearly anticipating something from her other than the blank stare she gave him.

“I didn’t know it was in Bali, though. I thought it was somewhere closer.”

That was the lie she told her mom about this trip: that she was heading to a nearby town for a few days for an exciting job interview. Her mom even drove her to the bus station to see her off. Instead of catching a bus, though, she took a taxi to the airport to head to Bali. When she got back, she was going to say the interview didn’t go well and that she didn’t think she’d hear back from the company. This was the only way she could think of to get away from it all. Her family would never have approved of her taking a trip alone so far away.

“Yes,” she finally spoke. “It’s in Bali.”

“I kind of wish it was somewhere closer to here. Maybe then we’d be able to see each other more…”

“I know,” she said. She couldn’t have him go blather to anyone that he saw her at the airport, but how could he convince him of that without explaining that this was all a lie?

“Are you considering moving to Bali?” he asked.

“We’ll see,” she answered. She was just going on a trip to get away from this town, but she didn’t need to tell him that. Part of her would love to move to Bali. She’s seen all the pictures, but deep down, she knows that would never happen. She’s just taking a trip. He didn’t need to know that.

“Don’t you have a nice life for yourself here?”

Absolutely not. She hated this small town, trapped in the same set of relationships with the same people, far away from any semblance of a good economy, but instead she just sat there and said nothing as he continued. He knew he had his life set here with his family business, so of course, he’d prefer if she stayed as well.

“What are your plans?”

“I don’t know yet. I am just going for a single interview. I don’t know if it will even work out.”

“I wish I had known you were going to Bali. I had friends there who you could have stayed with. What are your plans after your interview? You still could hang out with them if you’d like. They could show you around.”

“Thanks, but I won’t have time. I have a tight schedule.” She wished she could stay with someone she knew. It would have saved her a lot of money, but they would tell others. And she would definitely never stay with any of his people.

“It’s not a problem. I can text them right now…”

“No!” she shot back. He looked almost taken aback by the assertiveness in her voice that he had never seen before. “Don’t tell them!”

“Why? It’s not like your visit is a secret? Do you…”

He stopped when he saw her look of horror at this statement.

“You haven’t told anyone in town that you are going to Bali. Have you?”

She didn’t say anything but just looked at him dejected. Her secret has been found out.

“I just don’t want anyone back home to think of me differently, like someone with such an opportunity. Unless I actually do get the job.”

“That’s fair. You may have to tell them eventually, though, but I’ll keep your secret.”

He agreed to keep it under wraps. She no longer had a reason to stay in conversation with this man.

“Thank you,” she murmured. “Now if you would excuse me, I really have to use the toilet.”

She left too quickly to look at him give an excuse for her to stay. All she heard was him faintly calling back that she hoped she had a good time. She didn’t care. She was free.

Would he actually spill the beans? That was a problem for another day. She could sit in the stall until it was time to board her flight. There he could not follow.

The Freezer (A Short Story)

There it is, the Cooler. The place I’d have to go. My boss asked me to do an inventory to count every single thing in that cold dark room.

I walk into the huge fridge. The door automatically snaps shut behind me. It’s a long corridor with one bend, which leads to another narrow sliver of a room. A passageway to nowhere. On all sides are piles of boxes of frozen foods, almost squeezing me shut at any moment. No matter how many times I come I can never get used to this space.

I begin my inventory count with boxes of canned peas. For each box I see, I make a mark on my little notepad. Then I move onto the next item. It’s pretty boring. Why did I even accept this job? I had little choice at the time. It offered a paycheck after I graduated, the only way I could find to pay my student loans and afford rent. I can still picture my father’s dejected expression when I told him about the offer. My dad was too polite to say what he thought, and just gave me a blank congratulations, but I could tell he was realizing that all his dreams for what his son would amount to would come to nothing.

Anyways, where was I? I was now counting ice cream carts. If only I could eat one. There’s a new cart. I mark a check on the page, but wait? I check where I marked it. Was that the group for ice cream or one of the other foods? I can’t remember. My little notepad is becoming filled with little groups of marks, too many to remember which is which.

I’m such a fuck up?! I can’t even count carts of ice cream. No wonder I can’t find a good job. I’ll be stuck working here until the day I die.

I guess I never really liked my job anyways. It’s so boring. That is the real reason I can’t keep anything straight. I just don’t care. If I had a real job, I would do it well, or at least, I hope I wouldn’t find a way to mess that up too.

A loud crash in the other passageway snaps me back to reality. What on earth is that? Something must have fallen. Was that me? I’ve been shifting boxes around to do this count, but I hadn’t touched anything over there. Why would something have fallen over there?

I place my clipboard down and walk over to see what happened. There’s nothing. No strewn boxes. Maybe I just heard something. Maybe someone dropped something on the other side of the wall.

I come back, and I can’t find the notepad. I thought I had just set it down on this one box. Where could it have gone? I look around. It’s not on the other boxes. Did it fall somewhere? I start rummaging through a few boxes, moving some around and looking through them. No notepad. I can never seem to find anything anyways.

Kneeling before a box, my butt accidently knocks the stack of boxes behind it. A couple of them crash loudly onto the ground. Just another example of me failing. I begin to look over to see the damage.

But several more boxes fall. This time, they’re in the other room. I shoot straight up. That can’t be me. I hear a growling noise. Something is there.

I don’t have time for this, and I run straight to the door, but it’s locked. I try to pound against it, but no one is outside. The door is pretty thick to seal in the cold. It’s not like they could hear my knocking anyways. My phone has never worked in this deep part of the basement. The creature moves as I knock, as if the noise is stirring it.

This can’t be happening. I do the only thing that makes sense, and that is to go back to work. It’ll keep my mind off of whatever is going on on the other side. That’s all I am here to do. I count the boxes of items. I don’t have my notepad, but that’s okay. I can keep track of the numbers in my head. I hear it moving about. It knocks over boxes, and its breathing grows strained like it’s choking on its own droll. I desperately cling to counting my canned mangoes.

WHACK! It sounds like an entire shelf of stuff has fallen over there. I completely lose track of my count. The bang seems to dig into my very bones. “I’m so dumb?!” I shout reflexively. The creature stops for a few seconds of eerie silence. Then it makes its way towards my room. It must have heard me!

I instinctively dive behind a set of boxes in a vain attempt to protect myself. I’m too much of a wimp to take it on. This is why I deserve death. I wasted my life; why wouldn’t I also waste my death, just sitting here waiting for it to come pounce on me. And what a way to go? In the very bowels of my employer, who doesn’t care enough about me? I bet they’d just clean up my body, make an insurance claim about the goods my blood got spilled on, and move on like nothing happened. Why did I waste my life here?

I hear the monster on the other side of my tower of boxes, gurgling and foaming. That’s it. If I am going to die, I might as well do something. I knock over a box of cans on the top of my stack so that it falls directly on top of it. I hear it whimpering in pain. That slowed it down, but it’s still making its way up my tower.

I plunge my hand into another box and the first thing I can find. It’s a small metallic can of tuna about the size of a fist. This will work. I can use it to punch the beast. Its ugly head rears the top of my fortress as it climbs down, coming straight for me.

I draw back my fist when I realize that it nuzzles its head against my leg. What does it want? I don’t know, but it seems friendly. It looks at me, whimpering in a high pitched voice at my shaking body that I have curled up in the fetal position. I feel an immense compassion towards it: it was simply trapped in this dungeon just trying to get by, like me. When it realizes that I’m not going to give it food, it wanders over to the puddle of food that fell out of their packaging all over the floor in another part of the freezer, slurping it up desperately.

I seize the moment and rush to the door, trying to jiggle it open again. It turns out it was unlocked the whole time. I guess in my panic before, I couldn’t get the latch at the proper angle. I rush outside and don’t look back.

Screw this job. I’m going home.

Rejected by Others: Growing Up with Epilepsy in Yogyakarta, Indonesia

This is a transcript of my conversation with Bella in Yogyakarta, Indonesia. She describes her experiences growing up with epilepsy. Throughout her childhood, others have judged or alienated her because of her disease. This is her story of overcoming the stigma others have placed on her.

She spoke Indonesian, and our friend, Hanisa, translated our conversation into English. Because of the way we switched languages throughout the conversation, I decided to post a transcript for anyone interested in reading Bella’s original statements. For anyone who, like me, does not speak Indonesian, all you have to do is copy and paste her statements into a translation app.

Original Version Published Here: https://youtu.be/m8GGnTFydqM

You can read more Life Snippets, glimpses into people’s lives around the world, what kinds of issues they face given their cultural context and how they choose to navigate the challenges in life, here.

Transcript of Our Conversation

[Stephen – Video’s Introduction]

Hello everyone. This is Stephen with the Curious Life and this video is the first video in a series I’m starting. My plan is to interview people in the different places I visit as I travel the world and talk about their struggles, talk about what life is like for them, and in some cases some of the biggest struggles that they face. The idea is to help people think about the different types of struggles people face in different parts of the world and maybe help people who might experience a similar type of issue in their own context and help them think through how to navigate it themselves.

In today’s video, I’m going to talk with my friend named Bella in Yogjakarta in Indonesia. So she’s going to talk about her experiences growing up with epilepsy and maybe most importantly how people treated her growing up. A lot of people alienated her and bullied her and did a lot of mean things or you know didn’t understand her or her condition. So hopefully this video will help for anyone thinking about people who might be different and what might be going on and help kind of understand the different ways that people with different conditions might behave differently and be more sympathetic. Or also people who maybe are growing up or who have to live with something like epilepsy. So I hope you enjoy, and you’ll get more videos like this in the coming weeks.

[Our Conversation]

[Stephen]

Hello everyone, this is Stephen. I’m specifically here with Bella, my friend, and also with Hanisa. Hanisa is here for translation support and emotional support as well. Bella, how are you doing?

[Bela]

Fine.

[Stephen]

Good. That’s good. And [turning to Hanisa] how are you doing?

[Hanisa]

Good as well

[Stephen]

Yeah, I wanted to talk about maybe some of your journey. So for context, could you tell people a little bit about yourself?

[Hanisa]

Jadi perjalanan kamu gimana? Kamu minta tentang diri kamu?

[Bela]

Perjalanannya sungguh sulit, kadang ada yang mudah, sulit, terus liku-liku lah ya. seperti itu. Saya

mengalami epilepsi dari kelas 6 SD dan mengalami skizofrenia mulai dari lulus SMA tahun 2020.

[Hanisa]

Eh, jadi so she said that the journey is hard for her. Sometimes it’s easy, some is hard. She has been struggling since she was diagnosed with epilepsy as well. It started in elementary school

[Stephen]

Yeah wow. This makes sense.

(Oh and one other quick thing for anyone in case you’re wondering, I do have a cold so if my voice sounds deeper or if I randomly start coughing that’s why.)

But yeah, what was it like growing up with epilepsy?

[Hanisa]

Kamu ngasnya gimana in elementary school? Tumbuh tumbuh ya kamu kamu kamu kan tumbuh gede dari kecil udah epilepsi itu rasanya gimana kamu rasanya dari kelas 6 SD itu? Heeh. mulai ke trier ya. Heeh. tentang pembulian.

[Bela]

Terus dan SMP saya memilih individu waktu sekolahnya dan akhirnya SMA saya memilih pakai C. Oh. Saya memilih individu karena saya trauma karena dibully dari kecil.

[Hanisa]

So she said that at first the most triggering experience for her was when she was in the sixth grade. When in the sixth grade she got bullied by her friends. When in junior high school, she used to be a lone wolf. She used to be a person who didn’t interact with anybody else.

So at the senior high, she chose to do Packet C in Indonesia. It’s like an exam but not the majority of people who do it. It’s not the original exam from senior high school. You can do Packet A for is for elementary school Packet B is for junior high and Packet C is for senior high [in other words, Packet A is an alternative competency exam on can take to graduate from elementary school, Packet B for junior high school, and Packet C for high school].

She did Packet C because she didn’t want to experience having to go around in school. Yeah, that makes sense.

[Stephen]

I mean, I’m glad that you had that option, but it honestly seems like there’s a bit of hardship there. How did the students bully you?

[Hanisa]

Jadi dia paham. Jadi kayak untung ada kayak opsi lain itu dia ada pakainya tadi kayak jadi bisa menghindari itu. Tapi kalau dia tanya lagi jadi kayak kamu gimana merasanya waktu ekspresi waktu pengalaman waktu kamu dibul merasanya seperti apa?

[Bela]

Saya merasa sakit hati karena telah dibully tanpa merasa bersalah. Saya sebenarnya tidak pernah punya kesalahan dengan teman-teman SD, tetapi saya dibully dan dikata-katakan kotoran hewan, kuman dan tidak suka dengan teman-teman yang lain.

[Hanisa]

He said that she was so heart-broken when she was in elementary school at that time when she was in sixth grade. She felt that there’s friends who say bad things to her. Used to mock her saying that she wasn’t even a poop of the animal. She said, “You are bacteria.” And other bad words. They all said to her, but she felt like she didn’t do anything wrong at that time. But all of her friends, they mocked her.

[Stephen]

Why did they mock you? Was it just because you had epilepsy? That seems awful.

[Hanisa]

He kamu diol-ol tuh epilepsi aja atau kayak kenapa aku bis diol kayak

kira-kira? Teman-teman tuh kayak gitu kenapa kamu tahu enggak atau kamu enggak tahu benar?

[Bela]:

enggak tahu em kamu

[Hanisa]

So she said that her friends didn’t know that she had epilepsy at that time so it wasn’t about it.

[Stephen]

Yeah this makes sense. It seems like the like in of itself having epilepsy is something that can be very difficult to process especially as a kid. And it seems like you kind of also had to deal with people treating you differently at the same time.

[Hanisa]

Jadi pasti dia bilang pasti berat buat bela kan. Jadi kayak sesuatu yang kalau

diketahui nanti kan pasti orang-orang bakal kayak gitu kayak gitu.

[Bela]

Heeh. Bagaimana caranya mengalami itu perjuangannya dan entah bagaimana rasanya yang mengalami seperti saya. Entah itu bisa pulih atau tidak. Belum tentu orang yang mengalami seperti saya akan sekuat ini.

[Hanisa]

Iya. She said that many people experience epilepsy, but she doesn’t think that every other person can survive as much as she survived. She grew. She learned as much. She didn’t stop believing in herself. She still has the courage to stand within herself.

[Stephen]

That’s good. That’s awesome. What do you think helped give you that courage?

[Hanisa]

Kamu kok bisa seberani itu se percaya diri itu dengan dirimu untuk apa yang membantumu kayak apa sih gitu?

[Bela]

Saya berjuang dengan diri sendiri karena saya menyemangati diri sendiri kalau orang itu tidak pernah ada yang memilih saya. Terus dan saya pernah dibully itu. Hm. Saya rasanya sakit hati ingin rasanya ingin balas dendam. Hmm. He. Dan saya akhirnya kelas 5 SD mengamuk di satu kelas dan mengguyur satu teman saya, teman dekat saya.

[Hanisa]

So she said that after she got bullied in elementary school, she wanted to take revenge on the people who bullied her. And that actually happened when she was in fifth grade, she took some water with her, and she splashed it on the person and burned her in class.

[Stephen]

Oh wow. This is a different story but when I was that age I also did that to a boy

who was yelling at me and I happened to have some very hot water cuz I was boiling some water. And I realized that like it’s hot, and it was bad. It didn’t burn and which is good, but like I didn’t really think about it all the way.

Yeah. This makes sense. I mean maybe in general: What was it like learning about your epilepsy and processing that you had epilepsy and some of the other issues that you also developed like schizophrenia and stuff like that?

[Hanisa]

Eh, kamu gimana

[Bela]

Kayak memprosesnya di dalam diri kamu kalau tahu oh aku ternyata emang aku absus aku juga aku rasa kamu cara mengosesnya biar bisa kayak berdam kayak udah gitu kayak gitu. Heeh. Oke. Saya berdamai dengan diri sendiri karena telah diberi saran oleh kakak saya karena pemulihan itu penting dan harus minum obat rutin jika ingin sembuh.

[Hanisa]

So she made it herself. She said that what helps her the most is her sister. Her sister told her you can be good if you keep doing medicine and you keep on growing as a person and I will be there to support you. You said that ya?

[Bela]

I oke maamin sekarang boleh.

[Stephen]

Ok, that makes sense. And that’s important to have that support from your sister, from your family. How did you feel when she said that?

[Hanisa]

Perasaan yang bilang gimana pas kakak bilang kayak gitu?

[Bela]

Rasanya tidak terima jika dikejar-kejar atau di dipaksa untuk minum obat. Sebenarnya saya tidak suka waktu itu awal kena epilepsi dan saya menyembunyikan obat itu di bawah kasur dan saya mengaku kalau saya sudah minum obat dan obatnya habis.

[Hanisa]

So she said that at first it was hard for her to accept that she had epilepsy, and when her sister said that you have to routinely have your medicine she didn’t want the medicine. So she hid it below her bed, and she didn’t drink it, but she said she drank it to her sister or family.

[Stephen]

This makes sense. Yeah, that makes total sense. I mean I’m glad the medicine can be complicated in of itself like what is the what is the medicine like I thought sometimes epilepsy medicine can be both complicated and have a lot of side effects too.

[Hanisa]

H jadi kamu kan medicin medicine perepsiaan jadi medicine perepsinya tuh apakah apa banyak atau kayak harus kayak ben harus teratur atau harus kayak berbari gitu?

[Bela]

Awal kena epilepsi, saya meminum obat dengan tiga kali sehari, pagi, siang, malam. Setelah bertahun 2 tahun kemudian, dosis diturunkan menjadi dua kali sehari. Lalu diturunkan kembali pada tahap selanjutnya jadi satu kali sehari dan tahun ini jadi 2 hari sekali.

[Hanisa]

Hmm. So she said when at first she got diagnosed with epilepsy, she had to drink medicine three times a day, and two years later she got the dosage reduced to two times a day. And then after that got reduced again to one time a day, and right now a day she only drinks it once every other day. So it’s getting less and less so. It’s getting easier.

[Stephen]

And what do you feel like? So, with what you’re saying with your sister, we were talking about focusing on personal growth. What do you think the growth has looked like for you over the last couple years?

[Hanisa]

Kan kamu tadi aa kayak fokus tentang pertumbuhan diri gitu. Nah, pertumbuhan dirimu yang beberapa tahun ke belakang ini seperti apa?

[Bela]

Saya sebenarnya perjalanan hidup ini sedang mengalami stres terus dan saya mengalami merasa kesendirian individu, tidak punya teman, merasa dijauhkan dengan teman dekat dan ingin bersosialisasi jadi tidak percaya. saya diri dan saya memikirkan memutuskan untuk mengedap di rumah sendiri menahan diri di rumah sendiri.

[Hanisa]

Hmm, so actually what she said right now was that she feels so lonely. She feels so stressed. She’d like to try to hold the life that she’s got going on lately. She felt like there are no friends who understand her, like, “I cannot say anything to anybody. My friend got away from me, and they want to get close to me.” And she said that she chose to go to her home and isolate herself there and don’t want to be with anybody else.

[Stephen]

I could definitely see that. If your friends are discounting you like that, I could understand wanting to go home and be safe there. When this happens and when you go home by yourself, how does it feel?

[Hanisa]

Perasaan bilang gimana pas sudah tahu perasaan karena kamu enggak gitu kamu mau pulang.

[Bela]

He enggak bukan e setuju juga.

[Hanisa]

Tapi kayak kamu kenapa enggak itu kamu mau pulang aja gitu enggak mau kayak gimana perasaan kamu kayak waktu pulang sendiri gitu?

[Bela]

Heeh. Banyak saya merasa tidak dianggap dengan teman, tidak berguna kepada tetangga. Dan saya merasa sakit hati, merasa rendah diri kepada diri sendiri, kecewa dengan diri sendiri. Kenapa saya selalu direndahkan, dijauhkan, dan diejek dengan teman sebaya?

[Hanisa]

She said that her mind is occupied with thinking that all of her friends, her peers, don’t want to get near her, and she cannot interact well with her peer group. All of the friends keep putting her outside of the circle.

[Stephen]

I could see that, and obviously I’m not like a medical expert, but I thought some of the medication for epilepsy could be very strong and that it can do a lot too. This makes sense. It’s unfortunate that this has been isolating you in this way. What helps you feel connected with others?

[Hanisa]

Jadi apa yang kamu merasa kamu merasa terhubung dengan orang lain tuh apa yang kamu apa yang bisa merasa terhubung kayak apa yang maksud saya merasa

[Bela]

terhubung dengan orang lain mulai dari berobat seizo ini dan saya mulai percaya diri setelah minum obat penyakit kizo ini dan saya jadi percaya diri untuk bersosialisasi kembali dengan teman sebaya saya dan saya ikut bergabung di komunitas KPSI. Saya merasa bangga dengan diri sendiri dan saya juga senang bisa berkumpul dengan teman-teman yang lain seperti Mbak Hanisa dan teman yang lain. Karena saya suka dengan teman yang pengertian, mendukung satu sama lain dan bisa apa? Mendukung belajar untuk mengenali penyakit mental.

[Hanisa]

She said that felt connected now especially with people in [the mental health support group she joined] like me [Hanisa] and the other friends here because she likes it when people around her are understanding. The people around her can support each other in their own way like that, and

said she likes it. That she can learn a lot from joining this community.

[Stephen]

This makes sense. What have been some of the biggest things you’ve learned in this community? And maybe for context for anyone watching, she’s referencing a community here in Yogjakarta that has people with different kinds of mental health issues whether it’s epilepsy or other things, and they come together and try to kind of talk things out like a small group community support.

[Hanisa]

What was the question?

[Stephen]

Oh, I’m sorry. The question was: How have you been growing in this group? Oh, what have you learned?

[Hanisa]

Apa yang kamu jadi paling paling kamu pelajar yang pelajaran apa yang kamu dapat PKWSI selama 2 minggu?

[Bela]

Oh, masih dapat. saya bisa mengenali penyakit mental, mendapat saran dari dokter saya bahwa harus melakukan aktivitas atau kegiatan sehari-hari itu penting karena agar membantu otak untuk berpikir kritis dan bisa membantu kesehatan mental jadi sehat lagi dan push.

[Hanisa]

She likes it that she can learn from her peers. As well, she can manage her own diseases, and she can talk to the psychiatrist there and KPS as well. She likes it that way. She can grow to be a better person here in KS.

[Stephen]

This makes sense. I’m glad that you have this opportunity. It seems like you’ve been disconnected from so many other people because of this condition. I guess one other question I wanted to ask: Given what you know now, is there anything that you would have done differently if you could go back in terms of how you kind of processed and handled all this?

[Hanisa]

Kalau kamu bisa masa lalu, adakah hal yang kamu pengin ubah? Dari situ eh dari situ sekarang kamu gimana?

[Bela]

ingin mulai belajar dari awal lagi. Seperti belajar di waktu SMP, SMA itu saya rasanya ingin mengulangi lagi karena saya seperti merasa kurang ilmu saja dan saya besok tahun depan ingin kuliah di kampus impian dengan dari pihak Yakum. H dan semoga saya bisa diterima.

[Hanisa]

So she said what she wanted to repeat. She wants to redo the time when she was in junior high school and senior high school just because she feels like the knowledge she had wasn’t enough, and she is planning to apply for college in the near future, by the support of Yakum, from that organization. She is hopeful that she can be accepted with courage.

[Stephen]

I hope I hope you get that too. That would be awesome. And I also think like you for many of us myself – I was like this – college can be a time that we can kind of redo a lot of the aspects of either high school or middle school that we would have done. It’s an opportunity to, on some level.

[Hanisa]

Jadi, kamu bisa ngulang lagi yang kamu pengin pulang di SMA, SMA kamu ngulang pas kuliah. Jadi kamu bisa lakuin itu pas kuliah. Jadi itu jadi ada kesempatan buat kamu tidak bisa mengekerien yang kamu experience SMP SMA bisa experience kuliah.

[Stephen]

I have a final question, but it does have two parts. The first part is what would you recommend for anyone experiencing this having this starting at a young age like you. What would you recommend they do to help and help grow?

[Hanisa]

Saran dari buat teman-teman yang sama yang berak ituus apa biar mereka juga tetap bisa tumbuh tetap bisa berkembang gitu ya?

[Bela]

Sarannya saran saya untuk teman-teman yang mengalami seperti saya harus semangat dalam menjalani hidup ini untuk minum obat rutin biarpun itu perjalanannya berat anggap saja obat itu adalah vitamin dan itu bisa memulihkan penyakit biarpun perjalanannya dan waktunya lama semoga yang mengalami saya bisa sembuh pulih, dan tetap semangat untuk menjalani hidup walaupun mengalami penyakit epilepsi dan skill.

[Hanisa]

She said to all of you who experience the same as Bella. She said to keep on fighting. You can pass through that and don’t forget to drink your medicine regularly. Think of it as a vitamin so you don’t think much about it.

[Stephen]

That makes sense. I would agree with all that. It’s like I think in a case like this to take your medicine. It’s like investing in yourself. It’s like growing yourself, making sure you’re on track. So this was the second part of the final question: What would you recommend for anyone who has someone in their family encountering this or has a friend or somebody they know who is having to deal with epilepsy especially at a young age?

[Hanisa]

Kalau saran cara bu orangnya saran buat keluarganya itu apa?

[Bela]

Kalau punya seorang yang punya seperti yang insyaallah masih muda gitu kalau tidak saran saya sangat sulit dijelaskan karena ibu saya, kakak saya, adik saya tidak percaya kalau saya mempunyai penyakit mental itu mood-nya sedang naik turun karena saya dianggap seperti anak pemalas walaupun saya bisa melakukan lakukan aktivitas apapun saya kadang naik turun mood-nya dan orang tua saya tidak percaya dengan saya kalau saya itu sedang mood eh tidak mood biarpun saya bermalas-malasan, tapi saya masih tetap bisa melakukan aktivitas sehari-hari.

[Hanisa]

She said that her mother, her sister, her brother didn’t understand her and said that she was being labeled as lazy. But she didn’t think that she was lazy, just not having the mood to do the things their parents or siblings say at that time.

[Stephen]

Yeah this makes total sense. I bet I think for some people sometimes people can label something as lazy and not realize that it can just be a little harder for you to do it. Like in some people with this condition doing something for people that maybe is normally this level of difficulty for them is that higher level of difficulty for you. It just takes more work. So it doesn’t seem fair to consider you lazy for not being able to do it. It just might be that that thing is a little harder for you to do.

[Hanisa]

He itu ya hal-hal tadi gitu tuh kamuak enggak bisa kalau kamu ngesiap langsung kamu tuh malas kamu tuh gini ya karena itu itu sulit waktu itu untuk melakukan hal yang disuruh waktu itu karena memang belum kan belum pas itu kan sama waktu itu.

[Bela]

Iya.

[Stephen]

Yeah. And I did say the final question, but I do have a followup question on that real quick. If somebody knows someone, you know, in a family or friend who has this condition, what can they do to try to understand it better? You know, maybe unlike your family who didn’t always seem to understand.

[Hanisa]

Kalau dari eh kan tadi bilang kalau yang belum belum semuanya paham gitu kan.

[Bela]

Iya.

[Hanisa]

Nah, kalau misalnya sebagai berat pilihnya seperti apa? Kalau biar orang mengerti paham itu kayak seperti apa yang baik gitu kalau orang yang juga sarannya?

[Bela]

Heeh. Caranya saya sebenarnya ingin memberitahu keluarga saya kalau saya itu bisa melakukan aktivitas apapun. Tapi keluarga saya tidak percaya kalau saya itu anaknya kadang rajin, kadang suka membantu orang lain dan keluarga saya tidak pernah percaya dan saya dianggap anak pemalas kadang-kadang karena orang tua saya pulang waktu orang tua pulang pulang kerja saya masih tidur saya karena kalau tidak mood saya kerjaannya tidur dan saya mager kalau untuk melakukan aktivitas apapun jika eh walau mood-nya masih naik turun

[Hanisa]

She said that she still has an issue with trust in her family. So her parents when they got home she saw that Bella was sleeping at the time just in the bed and didn’t do anything. And that makes her parents think that it’s a thing that Bela shouldn’t do.

[Stephen]

Hm. This makes sense. How would you have liked your parents to have responded in that situation?

[Hanisa]

Penginnya kamu orang gimana kayak gitu?

[Bela]

Pengertian mengerti kondisi saya kalau saya itu orangnya tidak pemalas. Karena saya malas itu karena mood-nya saya naik turun. Dan saya sebenarnya pengin melakukan aktivitas karena ingin membantu. Tapi saya tuh terasa naik turun. Jadi orang tua saya tidak percaya kalau saya itu memiliki gejala yang lebih apa di bawah dari orang lain. Dan saya ingin menceritakan pada orang tua saya kalau teman-teman di komunitas ada yang lebih parah dari saya. Tapi saya tidak berani karena saya mungkin dianggap mereka hanya omong kosong atau bohong gitu ya. Jadi orang tua saya menganggap saya di keluarga saya paling malas ya.

[Hanisa]

She said that she doesn’t think that she’s the laziest person. That they must be really hard.

[Stephen]

Yeah, that’s really unfortunate. It probably adds insult to the difficulties you actually face on a regular basis to then have people say you’re lazy and just say that and to think about you that way.

[Hanisa]

Pasti susah pasti enggak enak Mas kalau orang yang bilang kayak gitu terus enggak gitu.

[Bela]

Sakit hati sekali rasanya. Rasanya saya ingin pengamuk tapi saya tidak berani. Saya mending diam saja menahan rasa marah, menahan amarah daripada membikin membuat keributan di rumah. Lebih baik saya diam daripada saya dimarahin, diomel-omel, dikatain yang tidak-tidak dan akhirnya menjadi masalah besar.

[Hanisa]

She said she wants to explode to her parents. She wants to say that that’s not true. She wanted to define herself but she chose to keep it by herself and didn’t say anything. But yeah that’s her from inside.

[Stephen]

That makes sense. That does sound very hard. I guess for now let’s say, “Thank you for doing this.” How would you like to sign us off? Would you like to do the peace sign or what would you like to do to sign us off?

[Hanisa]

Mau saya gimana buat kayak gantungnya untuknya gimana?

Terima kasih semuanya karena telah melihat saya di sini dan mendengar saya kisah dari remaja sampai dewasa sekarang ini. Saya ingin memberi saran kepada teman-teman semua jika mempunyai kisah seperti ini, harap diperjuangkan walaupun rasanya berat, sakit hati dan harus sabar mengalami menjalankan hidup ini walaupun memang itu memang berat bagi yang mengalami. Dan terima kasih sudah saya akhiri. Sampai jumpa.

[Stephen]

Thank you for listening and bye. Terima kasih. Thank you and peace.